Information and Advice to support people with Spina Bifida and or Hydrocephalus, their families and carers in Northern Ireland

Supporting someone who has the conditions of Spina Bifida and/or Hydrocephalus, their siblings, family, professionals or someone who cares for them. Some of the areas information and advice can be given on are Education, Health, Continence, Benefits, Pregnancy, Early Years, Peer support, etc. Support groups for families, children, teenagers and Adults are on hold at present due to Covoid - 19. Both telephone and online support continues and we are pro active in contacting our existing registered members. Virtual sessions are being set up and will increase with new topics over the next few weeks.

People can access our services by telephone, text, E mail, website and post. The details will be passed on to the appropriate support and development worker will then make contact regarding the request.