Management of ME/CFS: Adult & Paediatric- "First Do No Harm
Hope 4 ME & Fibro Northern Ireland
TICKETS AVAILABLE HERE: https://www.eventbrite.co.uk/e/management-of-mecfs-adult-paediatric-first-do-no-harm-tickets-46131336068
HOSTED BY ROBBIE BUTLER MLA
6.00pm Registration and finger buffet
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6.55pm -7.00pm WELCOME from Robbie Bulter
7.00pm - 7.10pm Hope 4 ME & Fibro Northern Ireland
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7.10pm - 7.20pm Dr. Michael McBride, Chief Medical Officer for Northern Ireland
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7.20pm - 7.30pm Louise Skelly, Head of Operations Patient & Client Council for Northern Ireland 'The Importance of The Patient Voice'
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7.30pm - 7.50pm Dr. W.R.C. Weir. NHS Infectious Disease Consultant with a special interest in M.E. and fibromyalgia. '
'The Diagnostic Dilemma'
Qualified: St Andrews and Dundee University Medical School 1972 Medicine: SHO posts: Nephrology/Cardiology/Neurology/Chest Medicine Senior Career: Nigeria/Hospital for Tropical Diseases (HTD)/Royal Free Hospital Appointed Consultant in Infectious Diseases (+ Trop Medicine) RFH 1987 Infectious disease – Tropical and in the UK at HTD
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7.50pm - 8.50pm KEYNOTE SPEAKER:
JOSE MONTOYA MD Stanford University
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"Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:
An Unfolding Story of Scientific Discoveries and Future Targeted Treatment"
Jose G. Montoya, MD, is the head of the ME/CFS Initiative at Stanford University, has treated ME/CFS patients and conducted extensive clinical research in an effort to improve diagnosis and treatment of this debilitating illness. Under Dr. Montoya’s leadership, the ME/CFS Initiative has had great success in engaging and collaborating with nearly 50 researchers across Stanford University and beyond. Together, they have discovered various potential biomarkers that have confirmed that ME/CFS is a real, physical disease. These discoveries are dramatically changing public and scientific opinions.
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8.50pm - 9.20pm Natalie Boulton, Producer of the award winning educational documentary “Voices from the Shadows“ premier screening
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Part 1. ME/CFS: Children & Young People - Diagnosis, Symptoms and Controversies
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Part 2. ME/CFS: Children & Young People - Management
Featuring Dr. Peter Rowe MD director of the John Hopkins Children's Center Chronic Fatigue Clinic in Baltimore, and a professor of Paediatrics at John Hopkins University School of Medicine, Baltimore, Maryland, USA.
Dr. Nigel Speight, is a Consultant Paediatrician with a long-standing special interest in ME, having served on the Chief Medical Officer’s Working party on ME (2002) and also the College of Paediatrics and Child Health Guidelines group (2005). Also acts Medical adviser to several ME charities including Hope 4 ME & Fibro N.I., the ME Assocaition, TYMES Trust and the 25% Group.”
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9.20pm - 9.30pm
Confirmation has been received, a Public Health Agency speaker will provide an update on the situation on ME services and the recently launched, new care pathway for fibromyalgia patients in Northern Ireland. (named person details to follow)
9.30pm - 10.00pm
Question and Answer session will be facilitated.
Ticket price includes comprehensive information pack and pre-conference buffet.
Sponsorship and inserts to the information packs from patient charities or healthcare provider information stands, are available (at the discretion of the charity only)
Please contact the charity for further details and prices: [email protected]
- Disability
- Health and wellbeing
Date and Time
- -
Location
Parliament Buildings Stormont
Ballymiscaw
Belfast
BT4 3XX
United Kingdom
Contact Details
Email: [email protected]
Phone: 07712 892834 (after 1pm weekdays only please)
More Information
NICE Guidelines for ME/CFS is now under review, due to global scientific breakthroughs and reports of the ineffectiveness and harms caused by current recommendations of graded exercise therapy and cognitive behavioural therapy, the review report will not be published until October 2020. During this transition period, this unmissable event will provide all primary care staff with a greater knowledge on how best to serve and protect this large patient population in Northern Ireland.
What does the Northern Ireland Health and Social Care Board say about ME?
"The group of patients affected by ME alone is estimated to number between 5,000 and 10,000 children, young people and adults, and neither is currently well served in community, primary and secondary care. There is localised good practice, but medical leadership to establish a modern and equitable service model is needed.
There are currently no designated medical practitioners working with this patient group, which can result in diagnostic delays and fragmentation of care and support for patients and families as well as limited scope for education and awareness-raising among other clinicians and practitioners. Primary care providers struggle to improve their capability in dealing with these patients in the absence of designated secondary care services and medical leadership, and patients tend to experience protracted and frustrating ‘journeys'.
(Abstract taken from April 2018 BMJ job description)
What does the Northern Trust say about ME?
”ME is a condition which medical science is continuing to decipher. This means many healthcare professionals are left unclear as to how best to treat it. This hasn’t been helped by the fact, at one stage, ME was labelled as a psychiatric condition. Now it is widely recognised that ME is a physiological condition which affects the immune, neurological and endocrine systems in the body”
(Abstract taken from Northern Trust May 2018 newsletter)
Management of ME/CFS: Adult & Paediatric- "First Do No Harm
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